119-s139

[Congressional Bills 119th Congress]
[From the U.S. Government Publishing Office]
[S. 139 Introduced in Senate

    (IS) ]

<DOC>

119th CONGRESS
 1st Session
 S. 139

 To amend the Public Health Service Act to reauthorize and extend the 
 Fetal Alcohol Spectrum Disorders Prevention and Services program, and 
 for other purposes.

_______________________________________________________________________

 IN THE SENATE OF THE UNITED STATES

 January 16, 2025

 Ms. Murkowski (for herself, Ms. Klobuchar, Mr. King, Ms. Hirono, Mr. 
 Moran, Ms. Baldwin, Ms. Cantwell, and Mr. Cramer) introduced the 
 following bill; which was read twice and referred to the Committee on 
 Health, Education, Labor, and Pensions

_______________________________________________________________________

 A BILL

 To amend the Public Health Service Act to reauthorize and extend the 
 Fetal Alcohol Spectrum Disorders Prevention and Services program, and 
 for other purposes.

 Be it enacted by the Senate and House of Representatives of the 
United States of America in Congress assembled,

SECTION 1. SHORT TITLE.

 This Act may be cited as the ``Advancing FASD Research, Services 
and Prevention Act'' or the ``FASD Respect Act''.

SEC. 2. SUPPORT FOR INDIVIDUALS AND FAMILIES IMPACTED BY FETAL ALCOHOL 
 SPECTRUM DISORDER.

    (a) In General.--Part O of title III of the Public Health Service 
Act (42 U.S.C. 280f et seq.) is amended--

    (1) by amending the part heading to read as follows: 
 ``fetal alcohol spectrum disorders prevention and services 
 program'';

    (2) in 

section 399H (42 U.S.C. 280f)--
        (A) in the section heading, by striking 
 ``establishment of fetal alcohol syndrome prevention'' 
 and inserting ``fetal alcohol spectrum disorders 
 prevention, intervention,'';
        (B) by striking ``Fetal Alcohol Syndrome and Fetal 
 Alcohol Effect'' each place it appears and inserting 
 ``FASD'';
            (C) in subsection

    (a) --
            (i) by amending the heading to read as 
 follows: ``In General'';
            (ii) in the matter preceding paragraph

    (1) --
            (I) by inserting ``or continue 
 activities to support'' after ``shall 
 establish'';
            (II) by striking ``FASD'' (as 
 amended by subparagraph
        (B) ) and 
 inserting ``fetal alcohol spectrum 
 disorders (referred to in this section 
 as `FASD')'';
            (III) by striking ``prevention, 
 intervention'' and inserting 
 ``awareness, prevention, 
 identification, intervention,''; and
            (IV) by striking ``that shall'' and 
 inserting ``, which may'';
            (iii) in paragraph

    (1) --
            (I) in subparagraph
        (A) --

    (aa) by striking ``medical 
 schools'' and inserting 
 ``health professions schools''; 
 and

    (bb) by inserting 
 ``infants,'' after ``provision 
 of services for''; and
            (II) in subparagraph
            (D) , by 
 striking ``medical and mental'' and 
 inserting ``agencies providing'';
            (iv) in paragraph

    (2) --
            (I) in the matter preceding 
 subparagraph
        (A) , by striking ``a 
 prevention and diagnosis program to 
 support clinical studies, 
 demonstrations and other research as 
 appropriate'' and inserting 
 ``supporting and conducting research on 
 FASD, as appropriate, including'';
            (II) in subparagraph
        (B) --

    (aa) by striking 
 ``prevention services and 
 interventions for pregnant, 
 alcohol-dependent women'' and 
 inserting ``culturally and 
 linguistically appropriate 
 evidence-based or evidence-
 informed interventions and 
 appropriate societal supports 
 for preventing prenatal alcohol 
 exposure, which may co-occur 
 with exposure to other 
 substances''; and

    (bb) by striking ``; and'' 
 and inserting a semicolon;
            (v) by striking paragraph

    (3) and inserting 
 the following:
 ``

    (3) integrating into surveillance a case definition for 
 FASD and, in collaboration with other Federal and outside 
 partners, supporting organizations of appropriate medical and 
 mental health professionals in their development and refinement 
 of evidence-based clinical diagnostic guidelines and criteria 
 for all FASD; and
 ``

    (4) building State and Tribal capacity for the 
 identification, treatment, and support of individuals with FASD 
 and their families, which may include--
 ``
        (A) utilizing and adapting existing Federal, 
 State, or Tribal programs to include FASD 
 identification and FASD-informed support;
 ``
        (B) developing and expanding screening and 
 diagnostic capacity for FASD;
 ``
            (C) developing, implementing, and evaluating 
 targeted FASD-informed intervention programs for FASD;
 ``
            (D) increasing awareness of FASD;
 ``
        (E) providing training with respect to FASD for 
 professionals across relevant sectors; and
 ``
        (F) disseminating information about FASD and 
 support services to affected individuals and their 
 families.'';
            (D) in subsection

    (b) --
            (i) by striking ``described in 

section 399I'';
            (ii) by striking ``The Secretary'' and 
 inserting the following:
 ``

    (1) In general.--The Secretary''; and
            (iii) by adding at the end the following:
 ``

    (2) Eligible entities.--To be eligible to receive a 
 grant, or enter into a cooperative agreement or contract, under 
 this section, an entity shall--
 ``
        (A) be a State, Indian Tribe or Tribal 
 organization, local government, scientific or academic 
 institution, or nonprofit organization; and
 ``
        (B) prepare and submit to the Secretary an 
 application at such time, in such manner, and 
 containing such information as the Secretary may 
 require, including a description of the activities that 
 the entity intends to carry out using amounts received 
 under this section.
 ``

    (3) Additional application contents.--The Secretary may 
 require that an eligible entity include in the application 
 submitted under paragraph

    (2)
        (B) --
 ``
        (A) a designation of an individual to serve as a 
 FASD State or Tribal coordinator of activities such 
 eligible entity proposes to carry out through a grant, 
 cooperative agreement, or contract under this section; 
 and
 ``
        (B) a description of an advisory committee the 
 entity will establish to provide guidance for the 
 entity on developing and implementing a statewide or 
 Tribal strategic plan to prevent FASD and provide for 
 the identification, treatment, and support of 
 individuals with FASD and their families.''; and
        (E) by striking subsections
            (c) and
            (d) ; and
        (F) by adding at the end the following:
 ``
            (c) Definition of FASD-Informed.--For purposes of this section, 
the term `FASD-informed', with respect to support or an intervention 
program, means that such support or intervention program uses 
culturally and linguistically informed evidence-based or practice-based 
interventions and appropriate societal supports to support an improved 
quality of life for an individual with FASD and the family of such 
individual.''; and

    (3) by striking sections 399I, 399J, and 399K (42 U.S.C. 
 280f-1, 280f-2, 280f-3) and inserting the following:

``

SEC. 399I. FETAL ALCOHOL SPECTRUM DISORDERS CENTERS FOR EXCELLENCE.

 ``

    (a) In General.--The Secretary shall, as appropriate, award 
grants, cooperative agreements, or contracts to public or nonprofit 
private entities with demonstrated expertise in the prevention of, 
identification of, and intervention services with respect to, fetal 
alcohol spectrum disorders (referred to in this section as `FASD') and 
other related adverse conditions. Such awards shall be for the purposes 
of establishing Fetal Alcohol Spectrum Disorders Centers for Excellence 
to build local, Tribal, State, and nationwide capacities to prevent the 
occurrence of FASD and other related adverse conditions, and to respond 
to the needs of individuals with FASD and their families by carrying 
out the programs described in subsection

    (b) .
 ``

    (b) Programs.--An entity receiving an award under subsection

    (a) may use such award for the following purposes:
 ``

    (1) Initiating or expanding diagnostic capacity for FASD 
 by increasing screening, assessment, identification, and 
 diagnosis.
 ``

    (2) Developing and supporting public awareness and 
 outreach activities, including the use of a range of media and 
 public outreach, to raise public awareness of the risks 
 associated with alcohol consumption during pregnancy, with the 
 goals of reducing the prevalence of FASD and improving the 
 developmental, health (including mental health), and 
 educational outcomes of individuals with FASD and supporting 
 families caring for individuals with FASD.
 ``

    (3) Acting as a clearinghouse for evidence-based 
 resources on FASD prevention, identification, and culturally 
 and linguistically appropriate best practices, including the 
 maintenance of a national data-based directory on FASD-specific 
 services in States, Indian Tribes, and local communities, and 
 disseminating ongoing research and developing resources on FASD 
 to help inform systems of care for individuals with FASD across 
 their lifespan.
 ``

    (4) Increasing awareness and understanding of 
 efficacious, evidence-based screening tools and culturally and 
 linguistically appropriate evidence-based intervention services 
 and best practices, which may include by conducting nationwide, 
 regional, State, Tribal, or peer cross-State webinars, 
 workshops, or conferences for training community leaders, 
 medical and mental health and substance use disorder 
 professionals, education and disability professionals, 
 families, law enforcement personnel, judges, individuals 
 working in financial assistance programs, social service 
 personnel, child welfare professionals, and other service 
 providers.
 ``

    (5) Improving capacity for State, Tribal, and local 
 affiliates dedicated to FASD awareness, prevention, and 
 identification and family and individual support programs and 
 services.
 ``

    (6) Providing technical assistance to recipients of 
 grants, cooperative agreements, or contracts under 

section 399H, as appropriate.
 ``

    (7) Carrying out other functions, as appropriate.
 ``
            (c) Application.--To be eligible for a grant, contract, or 
cooperative agreement under this section, an entity shall submit to the 
Secretary an application at such time, in such manner, and containing 
such information as the Secretary may require.
 ``
            (d) Subcontracting.--A public or private nonprofit entity may 
carry out the following activities required under this section through 
contracts or cooperative agreements with other public and private 
nonprofit entities with demonstrated expertise in FASD:
 ``

    (1) Prevention activities.
 ``

    (2) Screening and identification.
 ``

    (3) Resource development and dissemination, training and 
 technical assistance, administration, and support of FASD 
 partner networks.
 ``

    (4) Intervention and treatment services.

``

SEC. 399J. AUTHORIZATION OF APPROPRIATIONS.

 ``There are authorized to be appropriated to carry out this part 
such sums as may be necessary for each of fiscal years 2025 through 
2029.''.

    (b) Report.--Not later than 4 years after the date of enactment of 
this Act, the Secretary of Health and Human Services shall submit to 
the Committee on Health, Education, Labor, and Pensions of the Senate 
and the Committee on Energy and Commerce of the House of 
Representatives a report on the efforts of the Department of Health and 
Human Services to advance public awareness of, and facilitate the 
identification of best practices related to, fetal alcohol spectrum 
disorders identification, prevention, treatment, and support.
            (c) Technical Amendment.--

Section 519D of the Public Health Service 
Act (42 U.S.C. 290bb-25d) is repealed.
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