119-hres456

[Congressional Bills 119th Congress]
[From the U.S. Government Publishing Office]
[H. Res. 456 Introduced in House

    (IH) ]

<DOC>

119th CONGRESS
 1st Session
H. RES. 456

 Expressing support for the designation of the month of May 2025 as 
 ``Progressive Supranuclear Palsy Awareness Month''.

_______________________________________________________________________

 IN THE HOUSE OF REPRESENTATIVES

 May 29, 2025

 Mr. Subramanyam (for himself, Mr. Auchincloss, Mr. Bacon, Mr. Beyer, 
Mr. Bilirakis, Ms. Brownley, Mr. Cleaver, Mr. Cohen, Ms. DelBene, Mrs. 
 Foushee, Ms. Matsui, Ms. McClellan, Mr. McGovern, Mr. Quigley, Mr. 
 Pocan, Mr. Ryan, Ms. Salinas, Ms. Scanlon, Ms. Scholten, Mr. Scott of 
Virginia, Mr. Austin Scott of Georgia, Ms. Sherrill, Ms. Stansbury, Mr. 
 Stanton, Ms. Garcia of Texas, Mr. Thanedar, Mr. Tonko, Mrs. Watson 
 Coleman, Ms. Kelly of Illinois, and Mr. Vindman) submitted the 
following resolution; which was referred to the Committee on Energy and 
 Commerce

_______________________________________________________________________

 RESOLUTION

 Expressing support for the designation of the month of May 2025 as 
 ``Progressive Supranuclear Palsy Awareness Month''.

Whereas progressive supranuclear palsy, often referred to as ``PSP'', is an 
 adult onset neurodegenerative disorder that affects multiple areas of 
 the brain and causes complex symptoms and care needs;
Whereas, although some symptoms may appear similar to that of Parkinson's 
 disease, progressive supranuclear palsy is a distinct disease that is 
 part of a family of conditions clinically defined as atypical 
 Parkinsonism;
Whereas, while estimates vary and the disorder is often misdiagnosed, 
 approximately 30,000 Americans are living with progressive supranuclear 
 palsy;
Whereas the symptoms of progressive supranuclear palsy can include cognitive 
 impairment, gait and balance difficulties, speech and swallowing 
 difficulties, stiffness, changes in personality, changes in vision, 
 depression, and a variety of other symptoms that can have a severe 
 impact on an individual's quality of life and life expectancy;
Whereas progressive supranuclear palsy is aggressive in its progression, with 
 most patients becoming dependent on care in 3 to 4 years;
Whereas there is currently no disease-modifying treatments and no known cure for 
 progressive supranuclear palsy;
Whereas progressive supranuclear palsy is believed to be caused by a combination 
 of environmental factors and genetics, but the exact cause is still 
 unknown;
Whereas there are thousands of family caregivers, friends, and loved ones whose 
 lives are greatly affected by progressive supranuclear palsy;
Whereas additional research, support services, and education are needed to 
 maintain quality of life for those affected by the disease, reduce 
 delays to diagnosis and access to proper care, lead to better 
 treatments, and find a cure for progressive supranuclear palsy; and
Whereas the establishment of the month of May 2025 as ``Progressive Supranuclear 
 Palsy Awareness Month'' will benefit patients, families, health care 
 professionals, and communities across the country and further bolster 
 awareness of the disorder: Now, therefore, be it
 Resolved, That the House of Representatives--

    (1) supports the designation of ``Progressive Supranuclear 
 Palsy Awareness Month'';

    (2) supports the goals and ideals of ``Progressive 
 Supranuclear Palsy Awareness Month'';

    (3) supports research to find better treatments and a cure 
 for progressive supranuclear palsy; and

    (4) commends the researchers, volunteers, organizations, 
 families, and individuals across the country who are working to 
 improve the lives of people living with progressive 
 supranuclear palsy.
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