119-hres419

[Congressional Bills 119th Congress]
[From the U.S. Government Publishing Office]
[H. Res. 419 Introduced in House

    (IH) ]

<DOC>

119th CONGRESS
 1st Session
H. RES. 419

 Expressing support for the designation of May 17, 2025, as ``DIPG 
 Awareness Day'' to raise awareness and encourage research into cures 
 for diffuse intrinsic pontine glioma

    (DIPG) and pediatric cancers in 
 general.

_______________________________________________________________________

 IN THE HOUSE OF REPRESENTATIVES

 May 15, 2025

 Mrs. Dingell (for herself, Mr. Joyce of Ohio, Mr. McCaul, Mr. Cohen, 
 Mr. Quigley, Mr. McGovern, and Ms. Castor of Florida) submitted the 
following resolution; which was referred to the Committee on Energy and 
 Commerce

_______________________________________________________________________

 RESOLUTION

 Expressing support for the designation of May 17, 2025, as ``DIPG 
 Awareness Day'' to raise awareness and encourage research into cures 
 for diffuse intrinsic pontine glioma

    (DIPG) and pediatric cancers in 
 general.

Whereas diffuse intrinsic pontine glioma

    (DIPG) affects 200 to 400 children in 
 the United States each year with certain regularity;
Whereas brain tumors are the leading cause of cancer-related death in children;
Whereas DIPG is the second most common malignant brain tumor of childhood;
Whereas DIPG is the leading cause of childhood death due to brain tumors;
Whereas the median survival time of an individual with DIPG is only 9 months 
 postdiagnosis with treatment;
Whereas 5-year survival of an individual with DIPG is less than 1 percent;
Whereas, given the age at diagnosis and the average life expectancy, the number 
 of life years lost annually because of DIPG is approximately 24,000 
 years of person life lost (calculated as the number of children 
 diagnosed by average of male and female life expectancy from that median 
 age, 300 x 80 = 24,000 years of person life lost annually);
Whereas prognosis has not improved for children with DIPG in over 40 years; and
Whereas Federal funding for research for pediatric cancer should be increased to 
 address the level of unmet medical need for this vulnerable population: 
 Now, therefore, be it
 Resolved, That the House of Representatives--

    (1) supports the designation of ``DIPG Awareness Day'';

    (2) encourages all people of the United States to become 
 more informed about diffuse intrinsic pontine glioma

    (DIPG) pediatric brain cancer, and the current challenges to the 
 medical research system in designating sufficient research 
 funding for pediatric cancers;

    (3) supports expanded research to better understand DIPG, 
 develop effective treatments, and provide comprehensive care 
 for children with DIPG and their families; and

    (4) encourages public and private sources of research 
 funding to elevate their consideration of the mortality rate of 
 a type of cancer, as well as the life-years lost, as 
 significant factors to be considered during the grant 
 application process.
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