119-hr5469

[Congressional Bills 119th Congress]
[From the U.S. Government Publishing Office]
[H.R. 5469 Introduced in House

    (IH) ]

<DOC>

119th CONGRESS
 1st Session
 H. R. 5469

 To improve research and data collection on stillbirths, and for other 
 purposes.

_______________________________________________________________________

 IN THE HOUSE OF REPRESENTATIVES

 September 18, 2025

 Mrs. Kim (for herself, Ms. Castor of Florida, Ms. Kelly of Illinois, 
 Mr. Joyce of Ohio, Mr. Valadao, Mr. Nunn of Iowa, Mr. Carey, Mr. 
Kennedy of New York, Mr. Tonko, Ms. Sherrill, Mrs. Hinson, Mrs. Watson 
 Coleman, Ms. Balint, Ms. Scholten, Ms. Morrison, Ms. Meng, Ms. Perez, 
 Mr. Panetta, Mr. Mann, Mr. Bacon, Mr. Veasey, Ms. Clarke of New York, 
Ms. Budzinski, Ms. Adams, Ms. Van Duyne, Ms. DelBene, Mr. Fitzpatrick, 
 Ms. Craig, Mr. Moolenaar, Mr. Carter of Georgia, Mrs. Cammack, Mr. 
 Bilirakis, Mrs. Dingell, and Mr. Riley of New York) introduced the 
 following bill; which was referred to the Committee on Energy and 
 Commerce

_______________________________________________________________________

 A BILL

 To improve research and data collection on stillbirths, and for other 
 purposes.

 Be it enacted by the Senate and House of Representatives of the 
United States of America in Congress assembled,

SECTION 1. SHORT TITLE.

 This Act may be cited as the ``Stillbirth Health Improvement and 
Education for Autumn Act of 2025'' or the ``SHINE for Autumn Act of 
2025''.

SEC. 2. STILLBIRTH RESEARCH AND DATA COLLECTION IMPROVEMENTS.

 Title III of the Public Health Service Act is amended by inserting 
after 

section 317L-1 of such Act (42 U.S.C. 247b-13a) the following:

``

SEC. 317L-2. STILLBIRTH RESEARCH AND DATA COLLECTION IMPROVEMENTS.

 ``

    (a) Stillbirth Surveillance and Risk Factor Studies.--
 ``

    (1) In general.--The Secretary may award grants to States 
 for purposes of--
 ``
        (A) conducting surveillance and collecting data, 
 including from existing datasets like State or sub-
 State Fetal and Infant Mortality Review data, with 
 respect to stillbirths for public health and research 
 purposes;
 ``
        (B) building State and local public health 
 capacity to assess stillbirth data; and
 ``
            (C) collecting and reporting data on stillbirth 
 risk factors, including any quantifiable outcomes with 
 respect to such risk factors.
 ``

    (2) Condition.--As a condition of receipt of funds under 
 this section, all data collected shall be in a manner that 
 ensures that such data is deidentified, and at a minimum, that 
 there is no disclosure of any individually identifying 
 information regarding a patient or a patient's health care 
 provider, and otherwise in a manner that is consistent with 
 applicable Federal and State privacy law.
 ``

    (3) Authorization of appropriations.--To carry out this 
 subsection, there is authorized to be appropriated $5,000,000 
 for each of fiscal years 2026 through 2030.
 ``

    (b) Guidelines and Educational Awareness Materials.--
 ``

    (1) In general.--The Secretary shall--
 ``
        (A) issue guidelines to State departments of 
 health and State and local vital statistics units on--
 ``
            (i) collecting data on stillbirth from 
 health care providers, and with the consent of 
 the woman who experienced the stillbirth, 
 including any such data with respect to the 
 clinical history, postmortem examination, and 
 placental pathology; and
 ``
            (ii) improving processes and training 
 related to stillbirth data collection and 
 reporting to ensure standardization and 
 completeness of data; and
 ``
        (B) develop, and make publicly available, 
 educational awareness materials on stillbirths.
 ``

    (2) Consultation.--In carrying out paragraph

    (1) , the 
 Secretary may consult with--
 ``
        (A) national health care professional 
 associations;
 ``
        (B) national associations representing State and 
 local public health officials;
 ``
            (C) organizations that assist families with 
 burial support and bereavement services;
 ``
            (D) nurses and nurse practitioners;
 ``
        (E) obstetricians and gynecologists;
 ``
        (F) pediatricians;
 ``
        (G) maternal-fetal medicine specialists;
 ``
        (H) nurse midwives and midwives;
 ``
            (I) mental health professionals;
 ``
        (J) statisticians;
 ``
        (K) individuals who have experienced a 
 stillbirth; and
 ``
            (L) advocacy organizations representing such 
 individuals.
 ``

    (3) Authorization of appropriations.--To carry out this 
 subsection, there is authorized to be appropriated $1,000,000 
 for each of fiscal years 2026 through 2030.
 ``
            (c) Vital Statistics Unit Defined.--In this section, the term 
`vital statistics unit' means the entity that is responsible for 
maintaining vital records for a State, or a political subdivision of 
such State, including official records of live births, deaths, fetal 
deaths, marriages, divorces, and annulments.''.

SEC. 3. EDUCATIONAL GUIDELINES REPORT.

    (a) In General.--Not later than five years after the date of 
enactment of this Act, the Secretary of Health and Human Services shall 
publish on a public website of the Department of Health and Human 
Services a report with educational guidelines on stillbirth and 
stillbirth risk factors.

    (b) Contents.--Such report shall include, to the extent practicable 
and appropriate, the guidelines issued and educational awareness 
materials developed under 

section 317L-2 of the Public Health Service 
Act, as added by 

section 2 of this Act.
 <all>